OS05.7.A MICROLENS: EXPLORING THE GAP BETWEEN PATIENT AND CAREGIVER NEEDS, AND TECHNICAL DEVELOPMENTS IN AI-ENABLED MEDICAL IMAGE INTERPRETATION

Abstract

Abstract BACKGROUND MicroLens aims to co-develop tools and functionality to enable patients & caregivers to view and understand their own brain tumour images, using an explicit design-led approach. Over 7 months we used meetings, written reports and online questionnaires to capture the views of 20 staff, patient and caregiver participants requirements for an AI-enhanced online medical image viewing tool. We have described our initial approach and results (1), but here we focus on how patient and caregiver needs differ from technological approaches described in the medical imaging literature. MATERIAL AND METHODS As part of the MicroLens project, we used thematic analysis to extract key patient, caregiver and staff concerns and needs. We then compared this with technical themes of the medical imaging technical literature, drawn from conference proceedings (MICCAI). RESULTS The desired level of technical performance was relatively low: patients and caregivers would mostly be happy with labelling of common simple structures and sides, rather than detailed annotation. Other desirable functionality was around sharing imaging with family members and better understanding of imaging. In contrast, the technical literature had a focus on tumour segmentation, classification and prediction of outcomes - none of which appeared in patients' desiderata. CONCLUSION Patients, caregivers and staff want very different functionality than the work being conducted in the technical literature. The reasons for this are interesting, and multi-factorial, but reinforce the need for patient-led development. We are currently implementing a prototype and our software developers are designing and developing five of the key tools that emerged from MicroLens project, based on a combination of our findings and theoretical approaches such as the NASSS framework (2). (1) https://blogs.imperial.ac.uk/componc/2022/10/04/introducing-microlens-using-a-design-approach-to-understand-what-brain-tumour-patients-want-from-their-images/ (2)Greenhalgh T, et al A New Framework for Theorizing and Evaluating Nonadoption, Abandonment, and Challenges to the Scale-Up, Spread, and Sustainability of Health and Care Technologies J Med Internet Res 2017;19(11):e367

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